Vitamin K and CCSVI


Supplements are a hot topic for those of us with MS/CCSVI. Someone recently asked a question about Vitamin K as Terry Wahl’s recommends kale and other leafy green vegetables as necessary for a proper diet.

There are three types of Vitamin K:

1. K-1: this is found in leafy green vegetables like kale. It goes to the liver and helps control blood clotting.

2. K-2: this one is made by the bacteria in your gastrointestinal tract. Instead of the liver, it goes to blood vessel walls, bones and tissues.

3. K-3: is synthetic. It is potentially harmful and should be avoided. It can be toxic and is not the Vitamin K we need at all.

The important things to remember is that K-1 plays a part in blood clotting only. Kale is rich in K-1 and therefore a person with Hughes Syndrome (“sticky blood”) or CCSVI should limit their intake of leafy green vegetables. They do not have to be eliminated in your diet but shouldn’t be the mainstay of your diet.

K-2 is an essential vitamin that keeps bones healthy and arteries clear. It helps to prevent cancer, osteoporosis and heart disease.

It has been shown through a study published in the Journal Science 2 that Vitamin K-2 helps maintain normal mitochondrial dysfunction. This is found in Parkinson’s disease. I would think that fact alone would make it an important consideration for those of us with MS/CCSVI.

If you take Vitamin D-3, then you need to take Vitamin K-2 also. Interestingly enough people who have suffered Vitamin D toxicity were found to be lacking in Vitamin K-2. There have never been a report of K-2 toxicity.

Symptoms of Vitamin K deficienciesfotolia_1769164_XSimages

  • Nosebleeds,
  • Abnormally bleeding gums
  • Heavy menstruation
  • Blood in the urine or stool
  • A deficiency can also be caused by long term antibiotic use. Antibiotics can kill the bacteria I mentioned earlier in the gastrointestinal tract which produce Vitamin K-2.

Some causes of vitamin K deficiency are:

  1. Cystic fibrosis
  1. Chronic malnutrition
  2. Celiac disease
  1. Bariatric surgery
  1. Removal of part of the intestines
  1. Alcoholism

Some herbal creams help lighten redness caused by broken blood vessels and helps to prevent burn scars.

Linda Rousay

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MS Classifications, Neurologists & DMD’s


Keep in mind that the authors of the current classifications of MS are neurologists. It has been changed over the years by the way.

1. Benign: (BMS) Mild infrequent sensory exacerbations with full recovery

2. Relapsing Remitting: (RRMS) Episodes of exacerbations and remissions where not all symptoms resolve completely. A person can have some permanent disability which may vary in severity. Relapses usually  more severe than in Benign MS. Relapses also become more severe with time.

3. Secondary Chronic Progressive: (SPMS) People with relapsing/remitting disease begin to gradually worsen over time with an accumulation of neurologic signs and symptoms. Relapses become more severe while remissions are less complete, shorter in duration, usually remissions stop all together. SPMS continues to progress steadily.

4. Primary Progressive: (PPMS)There are no relapses. The disease begins with a slow progression of neurologic issues. Problems appear and gradually worsen over time. Common problems include spastic paraparesis, cerebellar ataxia, urinary incontinence.

5. Progressive-relapsing: (PRMS). In this relatively rare type of MS, people experience both steadily worsening symptoms and attacks during periods of remission.

6. Progressive-relapsing  (PRMS)  This is a rare type of MS, people experience both steadily worsening symptoms and attacks during periods of remission.

Numbers 1&6 are controversial and some neurologists say they do not exist. Neurologists can’t seem to agree about many important points concerning MS. Causal factors, types & numbers of symptoms are two important ones. They do not however, have any difficulty pushing disease modifying drugs (DMD’s). Studies for these drugs are often skewed. It would be impossible for an acting physician to closely monitor what is happening with drug trials and studies. They are too numerous and the literature is daunting for even the most conscientious, experienced and well trained  doctors to wade through. Drug representatives are their main source of information. There are no specific educational requirements to become a pharmaceutical sales representative. All of the information they have about the drugs they peddle is what the drug companies tell them. The only real requirement is that they know how to look business like and have the instincts of a car salesperson.

Shouldn’t it bother everyone that their doctor may be prescribing medication for them based on the limited knowledge and  expertise of a non-medical sales rep? There are 82,000 working drug sales reps in the US alone. It is their job to quietly befriend doctors, keeping close track of which doctors take the free gifts and then determining which drugs the doctors later prescribe.

Our health-care system now is regarded as a business, period. Drug companies spend a great deal of money wining and dining physicians who prescribe their drugs There’s a wide range in value of the free gifts offered to doctors — from lavish trips to free Mother’s Day flower bouquets for doctors willing to hear a pitch about a new osteoporosis medicine. An exampthe yearly gathering of one of the most prestigious medical groups, the American College of Physicians. It was like a carnival: Doctors could be seen taking free massages, free food, free portraits, free Walkman players, free basketballs, and from one company pushing a new antacid drug, free fire extinguishers.Top drug makers  shower doctors with ethically questionable or illegal financial incentives to prescribe certain drugs. Research has found that these payoffs may influence doctor choices in ways that are not beneficial to patients — for example, getting doctors to use drugs for risky off-label uses that have not been approved by the FDA. More commonly, these practices have been found to increase healthcare costs by bribing doctors to prescribe more expensive drugs that aren’t any more effective than alternatives — sticking Medicare and Medicaid with the tab.Image

Pradaxa and CCSVI


Pradaxa is normally used for people with atrial fibrillation to prevent blood clots from this type of heart rhythm problem.  It is sometimes used for CCSVI patients post procedure even though Warfarin and other prescription anti-coagulants and/or blood thinners are less risky.  Pradaxa is being blamed for more than 500 deaths. Pradaxa is significantly associated with a higher risk of heart attacks and chest pain than Warfarin.

In January of this year, the Institute for Safe Medication Practice published a study that found Pradaxa bleeds were about 5 times more likely than Warfarin to result in death… that means a person taking Pradaxa is   500% more likely to die from a bleed than if they are taking Warfarin. There is no antidote if a Pradaxa patient starts bleeding.Vitamin K which is used in Warfarin incidents does not work for patients taking Pradaxa. At this time there are more than 1,100 lawsuits in federal court against Boehringer Ingelheim for adverse Pradaxa side effects. Of course this is only in the United States. Pradaxa use in the UK is rising.

Below I have listed supplements and foods that are used for their blood thinning qualities.

  1. Vitamin B-6
  2. Vitamin E
  3. Omega- 3 Fatty Acids
  4. Iron
  5. Magnesium
  6. Turmeric
  7. Bromelain
  8. Willow bark
  9. Tree Ear
  10. Jicama
  11. Garlic
  12. Onions
  13. Olive Oil
  14. Ginseng
  15. Green Tea    

Salicylates help to block vitamin K. Aspirin is the most well known. Many spices, nuts, and dried fruits are high in salicylates.

Spices:

  • Curry powder
  • Cayenne pepper
  • Ginger
  • Paprika
  • Thyme
  • Cinnamon
  • Dill
  • Oregano
  • Turmeric
  • Licorice
  • Peppermint

Fruits:

  • Raisins
  • Prunes
  • Cherries
  • Cranberries
  • Blueberries
  • Grapes
  • Strawberries
  • Tangerines
  • Oranges

Other sources of salicylates:

  • Chewing gum
  • Honey
  • Peppermints
  • Vinegar
  • Wine
  • Cider

If you are taking Pradaxa after the Liberation Procedure, be sure that you are informed and understand the alternatives.Image

More information about brain and spinal lesions.


Linda Rousay A lesion is an area of tissue that has been damaged through injury or disease. So a brain lesion is an area of injury or disease within the brain. While the definition sounds simple, understanding brain lesions can be complicated. That’s because there are many types of brain lesions. They can range from small to large, from few to many, from relatively harmless to life-threatening.
Brain lesions can be caused by injury, infection, exposure to certain chemicals, problems with the immune system, iron deposits in the brain that breach the brain blood barrier (BBB), and more. Many times the cause is not known.
Types of brain lesions:
• An AVM (Arteriovenous malformations ) These usually are congenital. Arteries and veins become tangled and connect from the development of fistulae, tube- like structures.Sometimes veins rupture and blood leaks through these structures by the force of blood flow from the weakened arteries. The brain doesn’t receive enough oxygen. Brain damage occurs and the patient may begin to have seizures which is the first symptom of AVM’s.
• Cerebral infarction: (Stroke) is a brain lesion where brain cells die from lack of blood.
• Cerebral Palsy: These lesions develop before birth. They do not progress. The damage is done resulting in the child being unable to move or communicate correctly.
• Multiple sclerosis (MS):Conventional medicine(neurologists) attributes these lesions to an autoimmune condition which damages the nerve linings (myelin) in the brain and spinal cord. These lesions make it difficult for messages to be sent and received properly between the brain and the rest of the body.We are learning that this is part of a vascular problem (CCSVI) which causes iron to reflux into the brain and cause the lesions.
• Tumors: Tumors are clumps of cells that grow abnormally from normal tissue. Some tumors in the brain are noncancerous, or benign.
The treatments for lesions range anywhere from surgery to doing nothing if they are not causing problems. Diagnosis and treatment is complex.
While I believe that neurologist on on the wrong page with their obsessive behavior over MS lesions, they are important. They can cause damage to the brain and affect virtually every bodily function. In CCSVI when the cause is treated, the lesions regress and some damage at least can be reversed.
Conditions associated with brain and/or spinal lesions:
• Von Hippel-Lindau disease
• Alzheimer’s Disease
• Parkinson’s Disease
• Vascular dementia
• Alcohol-associated brain lesions
• Devic’s Disease (NMO) This is one example of a true autoimmune disease
• Systemic pesticide exposure
• AIDS
• Birth injury
• Migraine Activity
• Irritable bowel Syndrome (IBS)
• Viral and Bacterial infection
by Linda RousayImage

Lesions and Lies


Those who are bedazzled with the medical jargon of their neurologists do themselves a disservice. They count and assess brain and spinal lesions like pennies dropped one by one into a piggy bank. After all, monetary compensation is the major motivation for MS care providers in general. Ask them to,explain brain and spinal lesions and be prepared for a smorgasbord of nonsensical medical verbiage and doublespeak that is second to none; bring a lunch and take notes.

Lesions are part and parcel for MS. There is little question that neurological damage can occur. They are caused by the reflux of iron into the brain due to impaired blood flow. In “normal ” people blood drains easily from the brain back to the body.This fact stares in the face of the currently accepted cause of Multiple Sclerosis.

To my knowledge there are only a handful of neurologists in the world who accept the fact (at least publicly) that lesions are not caused by a faulty immune or over active immune system. If your neurologist tells you that you need to take disease modifying drugs to manipulate your immune system and you believe that line of reasoning then there is little that anyone else can do for you. I’m speaking to every one in general not an individual.

Unless or until normal blood flow can be restored, it is likely that damage will progress. There are many ways to treat CCSVI. We in this group have identified approximately a dozen or more reasons why we have the symptoms we have identified and a laundry list of things to do to improve our health.

The most common and accepted belief is that our options in health care are limited to the choices our doctors make. As long as we are willing to adhere to protocol dictated by governments, HMO’s, insurance companies, drug companies, and organizations such as the Multiple Sclerosis Societies, nothing will change, including our inability to acquire a quality of life we deserve and they take for granted. We are like a willow in the wind leaning in whatever direction the wind blows. They are the ones who manipulate the breeze .

For over 4 years groups of like minded people have fought to change the status quo with varying degrees of success. People who do not have MS as it is defined for us by the powers that be, are observers and dictators. We are the observed and subservient . We do not have the political, professional, legal, or financial resources to balance that of the aforementioned. Canada leads their people by the nose with promises to placate them into compliance. People in the UK have been totally ignored without the benefit of any promises whatsoever. The United States appears to be the only country where the people are free to choose a wider variety of health care options. Looks can be deceiving. The US government’s coercion is simply more subtle.

Progress has been made on a small scale. Unfortunately it has been of benefit to a somewhat limited number of people. MS is hardly the lone bastard disease bereft of fair representation and treatment. It merely seems that way to the people who own it.

Food for thought:


(This is an excerpt from a blog I wrote about the growing conflict in the clinical diagnosis of Multiple Sclerosis and how it relates to CCSVI,  trauma,Chlamydia pneumoniae,vitamin and mineral deficiencies and other causal factors in both MS and  CCSVI.)745056-fig2Probiotics_Info_from_siteshapeimage_9SpirochetesEx2[1]

Now that Lyme has become a hot topic, people are demanding better testing facilities. A fair number of people previously diagnosed with MS have learned they have Lyme Disease. That is another factor in the growing suspicion that MS as it is globally defined, is not a disease at all but rather a term used to pigeon hole people into a generic box of symptoms. Interestingly enough, some of these people also have CCSVI and been treated successfully with angioplasty.

This has been a fascinating puzzle for me but I have finally come to make some sense of it. Most venous anomalies are congenital, not to be confused with hereditary. Ten people can be bitten by ticks who harbor the spirochetes that cause Lyme disease. Statistically speaking less than half of them will actually develop the disease, other health issues not withstanding. We are beginning to get a clearer picture of “MS” with in depth review of the facts we have learned about CCSVI over the past several years. The narrow view that CCSVI is confined to PwMS has been blown out of the water. Some patients with other neurological disorders such as chronic fatigue syndrome, fibromyalgia and Alzheimer’s disease meet the criteria for CCSVI also. It’s no wonder that people are confused by the diverse laundry list of symptoms among those in the MS community.

Chronic Illness is not synonymous with failure.


fairy-tales-6-tn[1]Dignity comes from within. People who do not know what it’s like to have severe cognitive issues, balance problems, etc. cannot relate to how we feel, period. They don’t have to. The change has to come from within. When I gave away all of my stiletto heels something died inside of me. I wasn’t self absorbed or shallow but I liked my heels. They were an expression of my personality. I thought I hit rock bottom when I traded my shoe collection for a pair of AFO’s decorated with lilac butterflies. In fact it was only the beginning of my downward spiral into the dark abyss of self-loathing and pity.

My career as a Family/Mental Health Counselor was a great source of self satisfaction. People relied on me and knew that I was as good as my word. In both our church and community, my family was known as one who accepted challenge and thrived on service. My self-esteem was tightly bound to my professional and personal success. A people pleaser, “no” was not in my vocabulary. My husband, Rick, was proud of me for my accomplishments. Our home was the neighborhood hub of activity and service.

As long as relapses were mild and short lived, I adapted. It took a great deal of effort to “look so good” (Haven’t we all heard and winced at that patronizing remark?) My first neurologist and the only one I ever trusted once observed, “You are a patient who has no complaints and dresses up for doctor appointments to convince both of us that you aren’t sick.” When RRMS turned into Secondary Progressive I began to lose my place as the matriarch, organizer, confidant and center of my busy home. My life was over as far as I was concerned.

After my recovery I was again in uncharted waters. It took a couple of years to convince myself as well as my family that my value transcends the limits of my physical body. In learning to adapt to progressive disability I forgot that I always had options but chose to dismiss them. Lost in Cog Fog Hell, I lost respect for myself therefore didn’t deserve it from others. In my mind I became an unwanted burden to friends and family as I could contribute nothing of value. It is a self-made trap that we cannot afford to stick our heads in. My favorite saying is, “Be who you are and say what you want because those who matter don’t mind and those who mind don’t matter.”

After a rough new beginning I am stronger, older, wiser and less concerned about what people think of me. My life has come full circle. In a better place and taking the road less traveled, I don’t fear the future anymore. We are all better than that.