Those who are bedazzled with the medical jargon of their neurologists do themselves a disservice. They count and assess brain and spinal lesions like pennies dropped one by one into a piggy bank. After all, monetary compensation is the major motivation for MS care providers in general. Ask them to,explain brain and spinal lesions and be prepared for a smorgasbord of nonsensical medical verbiage and doublespeak that is second to none; bring a lunch and take notes.
Lesions are part and parcel for MS. There is little question that neurological damage can occur. They are caused by the reflux of iron into the brain due to impaired blood flow. In “normal ” people blood drains easily from the brain back to the body.This fact stares in the face of the currently accepted cause of Multiple Sclerosis.
To my knowledge there are only a handful of neurologists in the world who accept the fact (at least publicly) that lesions are not caused by a faulty immune or over active immune system. If your neurologist tells you that you need to take disease modifying drugs to manipulate your immune system and you believe that line of reasoning then there is little that anyone else can do for you. I’m speaking to every one in general not an individual.
Unless or until normal blood flow can be restored, it is likely that damage will progress. There are many ways to treat CCSVI. We in this group have identified approximately a dozen or more reasons why we have the symptoms we have identified and a laundry list of things to do to improve our health.
The most common and accepted belief is that our options in health care are limited to the choices our doctors make. As long as we are willing to adhere to protocol dictated by governments, HMO’s, insurance companies, drug companies, and organizations such as the Multiple Sclerosis Societies, nothing will change, including our inability to acquire a quality of life we deserve and they take for granted. We are like a willow in the wind leaning in whatever direction the wind blows. They are the ones who manipulate the breeze .
For over 4 years groups of like minded people have fought to change the status quo with varying degrees of success. People who do not have MS as it is defined for us by the powers that be, are observers and dictators. We are the observed and subservient . We do not have the political, professional, legal, or financial resources to balance that of the aforementioned. Canada leads their people by the nose with promises to placate them into compliance. People in the UK have been totally ignored without the benefit of any promises whatsoever. The United States appears to be the only country where the people are free to choose a wider variety of health care options. Looks can be deceiving. The US government’s coercion is simply more subtle.
Progress has been made on a small scale. Unfortunately it has been of benefit to a somewhat limited number of people. MS is hardly the lone bastard disease bereft of fair representation and treatment. It merely seems that way to the people who own it.